After more than a month of hibernation, I finally made it to my rheumatologist for my follow up check up. He asked me to be back on December 18th but circumstances prevented me from seeing him then.
Anyhow, I went straight to him after my pm duty. After a rough night, losing my cell phone to a pickpocket, having my bag slashed and having 2 level 2 patients one of which almost coded.
I told my doctor that I have stopped taking all my medications except for the steroids and calcium supplement. I told him that I tried to observe if there would be improvement in my crea-protein ratio, proteinuria and hematuria and cholesterol without popping any pills.
He was not pleased to learn about it. He told me that just because the lab results has showed decrease in abnormal values, it does not mean that non-compliance to medication contributed to it. In fact, he emphasized that I may not be manifesting symptoms of exacerbations because the potency of my medications is still there and once it has drained out, I could expect for the worse.
Seriously, it did not scare me at all. I am too tired of living on medications. I just let him scribble prescriptions and asked me to go back after two weeks with my latest lab work up results.
I went out, with strong faith that God will be my greatest healer. I will leave it all up to him. I will just continue to be on steroids and simvastatin. I will also maintain my sambong tea and buko juice intake.
God, be my healer.

I feel so low that I am not able to feel ecstatic checking on result of my latest lab work up. They are as follow:

I have stopped taking in any medication except for the steroids. This is so far the greatest lab results I have gotten since I have gotten ill. A reason to celebrate but I am seriously not in the festive mood. I am about to see my rheumatologist and I know he will not be happy with the sudden withdrawal from the medication. I just hope that he would approve of me getting an alternative way of keeping up with my medical condition.

I have gotten the lab results. While I am pleased to learn that my urine protein and hematuria levels have gone down, they are not still normal. For my blood works, everything was normal except for my cholesterol level. I admit my diet has something to do with it because during the holiday season, I ate like there was no tomorrow. I was thinking, I will just make it up when the holidays are over. I was thinking of eating healthy and doing dome cardio. Using weight loss products will be at the bottom of my list.

In the past few days, I have noticed that my morning sniffles have returned. I have been sneezing like before, sneezing like there is no tomorrow.

I’d like to think that I am back to the good ‘ol days but that would be a  pulsating  lie.

I have developed joint pains, my feet continues to swell if I stopped popping  in diuretics, I still have hematuria and my back pain begins to eat me.

Maybe morning sniffles has just been added to my list of  unending physical condition.

Here’s to life. Cheers to life!

Yet again.  Seriously.

I got my lab  result and although the creatinine-protein ratio has improved  to 2.84 (which is still high, should be less than 1), I am still on edematous state.

My cholesterol level spiked at 400+ since I stopped taking in Crestor.

I took the liberty of getting urinalysis as I noticed that my urine is getting reddish plus  the fact that I have had fever in the past couple of days.  The tst revealed that I indeed have hematuria or blood in the urine and lots of bacteria too.

The doctor simply asked me how long  have  I been on therapy, I said about four months.  He just scribbled the same prescription as last month adding Crestor 10 mg (the previous dose before it was raised to 20 mg) to the list of medications.  I asked what he will do about the hematuria, he said that it’s a sign that I am on exacerbation and that I just need to take a rest.

He recommended a bed rest for the next 2 to 3 days.  Which I have requested by the way.

I don’t know but every time I come into his clinic, my mind always gets lost that I always forget to ask important things.  Is it because I could sense  that he’s always in a hurry? Or is it just me? I have been told by my friend, and as a nurse I should know, that it is my right to ask since I am paying for the consult.

Well, he asked me if I am experiencing pyuria (difficulty urinating). I said no, except that  I feel my urine is quite acidic that I need to wash after I urinated. He also asked if I have had fever, I said I had for two days but it went away immediately after taking paracetamol. He did not say anything.

My fear is that, I am close to finishing my treatment but I do not see any signs of light at the end of the tunnel.  Does this mean that I have to submit myself to chemo therapy in two months?

I am really scared.

God please help  me.